The Birth of Eden

Local mom Amanda retells the story of the birth of her second child, Eden.  We're sharing this story on October 15, Pregnancy & Infant Loss Awareness Day.  Eden's story is powerful, real, raw, and beautifully touching.  I hope you can find some time in your day to remember baby Eden and send some good thoughts and prayers to Amanda and her family.


I’ll never forget the moment I found out I was pregnant with our second child.  I had gone in for my annual gyno appointment, expecting to discuss birth control options with my provider because our daughter was 7 months old and I was finally feeling human again. To my surprise, my bloodwork came back positive.  How could I be pregnant? Ok, I knew how I could be pregnant, but I was exclusively breastfeeding. Don’t the old wives say you can’t get pregnant while nursing? Aren’t the old wives educated medical professionals that bar out all acts of God with the collective wisdom of the ages?  After informing my husband (and subsequently reviving him), I sat down to sort through my feelings.  Fear and an overwhelming worry of how we would provide for two kids on one income and how I would mother two children under two all wrapped up in the promise of an even greater sleep deficit crept in first.  I did what any overwhelmed mother would do in this situation-- feed the child snacks and pray I make it to bedtime. After some ice cream and the metaphorical “bedtime”, hope arrived.  Excitement at the promise of a new life and all the potential love and laughter that would ensue filled my heart.  I would just embrace the chaos, and take it one day at a time, cherishing the small things.

received_10211014874667517.jpeg

            A few months, a handful of doctor appointments, and one sonogram later, we were ready to announce.  It was December, and now that we had sonogram photos, we decided to do a Christmas themed announcement.  Our daughter held a stocking that said “Big sister” and a photo of our newest bundle to be.  The congratulations poured in over the next few hours.  Here we were, about to be a family of four. I still wasn’t sure totally how to feel. 

Three days later, on 12/13/14 I began to see spotting.  Immediate dread filled my heart.  I knew that blood, no matter how minute, was never exactly a good thing.  We called the doctor, but of course it was the weekend so I had to wait for a call back.  That was the longest 20 minutes I’ve ever experienced.  Again, my thoughts wandered to “How?” This baby was perfect 72 hours ago during the sonogram.  Perfect development, strong heart beat.  How could it have ended so suddenly? The on call physician told me that there was really nothing that could be done at this point, that my body was “taking nature’s path.” They said only to come to the hospital if I was experiencing hemorrhaging, and that it was probably best to just ride it out at home because my fetus was 6 weeks short of being viable.  They gave me no advice on what to expect next, so I tried to google without being sucked down the web-based medicine rabbit hole. 

After laying down in bed, I tried to come to some sort of peace with what was happening.  Spoiler alert: I’m still trying to come to terms with it, 3 years later.  As the bleeding increased, I migrated to the only place I felt I could be, the bathroom.  It was night, and I couldn’t bring myself to turn on the light to see what was happening.  I knew when it was over, and I sat there pondering if I could bring myself to reach down into the toilet bowl and hold my child.  I couldn’t.  I felt like a terrible mother.  Not only could by body not provide and protect this baby, but I couldn’t muster up the courage to hold him or her before having to just dispose of him or her because they were not “viable”.  I didn’t deserve this angel, and that’s why the opportunity was taken away.   My mind was a dark place thinking that somehow this was my fault. 

I went to the doctor the following day, where a sonogram showed my empty womb.  While the doctor tried to be sympathetic, I saw what she entered in my chart.  “Complete abortion” hit me like a brick wall.  I always felt like abortion was something you chose.  I did not choose this. I would not in a million years choose this.  There had to be a better term.  When it’s referred to it as a miscarriage, I feel like that defines the death of the child but not the birth.  The process IS birth.  I only really noticed that’s what it was because I had already had a vaginal delivery.  The waves of contractions, the overwhelming instant relief as soon as the baby is born are exactly the same.  I can’t speak on the variations of the degrees of pain, as it may be less for someone who experienced loss earlier in their pregnancy.  I was 18 weeks at the time but this was birth just the same.

Six months later, there were two pink lines.  Nine months after that, on Valentine’s Day, our rainbow baby boy was born [read that birth story here].  Full of love and laughter, escorted earthside by his angel sibling.  It was a healing moment for me physically because I spent my entire pregnancy expecting to lose him too.  The anxiety was a constant burden, and that was an unexpected side effect from this whole experience.

I lost a child, but I found a village. People sent their condolences, and hidden in quite a few more of those condolences than I ever expected were privately messaged stories of their own losses.  Because of the stigma, especially for older generations, I never knew how many mothers were in this horribly cruel club.  Losing your child is a pain I wouldn’t even wish upon my worst enemy.  Part of the healing for me was sharing in this web of collective grief.  I was not alone.  So many others understood my pain.  They felt the crushing guilt that I was feeling.  “Maybe if I had been better, healthier, more vigilant, etc.” was the general consensus, even though we all know we couldn’t have prevented it. You can’t keep the darkness from creeping in, but it’s comforting knowing that others came before you to help show you the light.

The village wasn’t all that came from this. I learned how my husband grieves.  During the loss, he was distant.  He kept saying things to assure me that I was fine and was trying to be optimistic.  We never spoke much about it.  A few months after, a teacher from my high school, who is now a genetic counselor, had posted a link to a research survey about how couples deal with pregnancy loss.  There was a questionnaire to be filled out separately by both the mother and the father.   This survey is finally what allowed him to open up and express his grief.  He tried to be the strong one for me, and I mistook his distance and nonchalance for apathy.  Our marriage grew from this new understanding, and I was able to tell him that I had silently named our baby.  Seeking out something gender neutral as my loss occurred two weeks before the anatomy scan, I had decided upon calling him or her Eden.  My paradise, lost.   

I learned a lot about myself as well.  I learned to be patient with my children because some are not so lucky.  I must be more empathetic to strangers, as they are the only ones who know what they are carrying around today.  I cannot be jealous of those that haven’t felt this pain because for some unknown reason I was chosen to shoulder this load and I will do it to prevent their pain.  Most importantly, I learned how to be kinder to myself.  There’s good days and bad days, days where I fail to notice the absence of our other child and days where the soul shattering emptiness feels like it will swallow me whole.  On days like the latter, I must take time to grieve.  One hearty, ugly cry at a time, I hope to be slowly reassembled.  The memories I make with the children I get to keep here on earth with me will fill the cracks and become the glue that holds me together.  Until we meet again, my angel baby, Eden.    


If you're living on the Eastern Shore and would like to share your birth story with our community, please email us at maria@thrivebirth.org.

The Birth That Changed My Life: Part III

This week in our Delmarva Community Birth Stories series, we're doing something a little different.  This story is shared by Thrive owner and doula, Maria Mengel.

If you haven't read Part I  or Part II yet, hop on over and check them out now.


We were in a really weird space.  Baby Charlotte's heart could stop beating at any moment.  And yet, there was nothing to do but wait.  Wes owns his own business which is right next to their home.  He would come home during lunch and talk to and read to Charlotte.

Wes would wake up in the middle of the night and feel Meghan's belly just to be sure that Charlotte would still kick back.  

My family spent a good bit of time with them during this time.  We looked at Charlotte's MRI photos, we talked about her and to her, and we tried to keep busy.  I remember Wes being pretty down.  But Meghan was surprisingly not.  It's hard to try to understand how she was feeling, but I think I can compare it to how sometimes people in devastating situations just do what needs to be done because there is simply nothing else to do.  She knew that there would be a time after the birth to grieve, mourn, process, and then finally begin healing.  It seemed to me that she was blocking those emotions while still holding out hope for baby Charlotte and her desire to spend whatever time she had with her in a positive way.

In conjunction with their midwives, the bereavement coordinator at the hospital she would be delivering in, the specialists at Children's National Medical Center, and me, Meghan and Wes drafted a number of birth plans to be prepared for all of the potential outcomes.  One for if Charlotte had passed before before birth (stillbirth plan), one for if Charlotte was born and it was clear that she would not be able to breathe on her own (comfort care only), and one for if Charlotte was born with vigorous breathing and crying (potential for medical care).  

Their specialists told them that there was only about a 5% chance that Charlotte would be born with the potential to breathe on her own since her lungs were so underdeveloped.  And after that, only a 5% chance that she would continue to be able to do so and medical care would actually be a possibility.  The statistics were pretty clear: It was a fatal diagnosis.  Because of this information, Meghan and Wes made the very difficult decision to only intervene with medical care if Charlotte was born breathing, crying, and made it very obvious to the medical staff that her lungs would function completely on their own.  The specialists told them that it would be very easy to be able to tell the difference.  If so, Meghan and Wes were comfortable providing Charlotte with the care that she needed for her renal system.  

There were so many text conversations with Meghan about how they came to this decision and why they were so adamant about not interfering.  They knew that if Charlotte was born alive that it was highly likely that they would only have a few moments or hours with her.  They didn't want those moments to be spent with Charlotte whisked away, hooked up to a ventilator, and away from the ones who love her.

They didn't want her to live her only earthly moments out of their loving arms. They didn't want her to die on a table surrounded by strangers.

My brain still has a difficult time wrapping around this issue.  I can absolutely see and understand the desire to want to do anything  possible to save your child.  And I know that there are parents out there who would make that choice.  As their doula, I planned to support them no matter what their decision was.  But truly, I felt so much respect for their decision to completely respect Charlotte's story and path and their desire to keep her as comfortable and at ease as possible.  

During this time, our conversations moved to her fears.  She had a few clear and distinct fears that she wanted to be able to work through before her birth.  In my childbirth education class, we talk a lot about using affirmations to help process fears and move away from negative thoughts.  I offered to create some pretty affirmations for Meghan to read to herself every day.  I'll share a few of them here.  

Before I do, I want to share that I understand that these affirmations are not within everyone's belief systems.  That's totally okay.  I made sure that the wording was something that Meghan was comfortable with and  that she completely approved.  I know that everyone will approach such a difficult subject by bringing their own life experiences, spiritual and religious beliefs, and heart with them.  As her doula, it wasn't within my scope or desire to express my beliefs.  I simply wanted to support her in processing her fears so that she would be as mentally prepared as possible for her labor and birth.

Some of the fears:  That Charlotte won't be born alive, that she will be in pain, that she will not breathe on her own.

Meghan later told me, "I wanted to believe them.  I read them over and over and over every day.  I hung them in our bathroom covering part of the mirror so I was forced to read them no matter how much pain they caused me."   

During the two weeks between diagnosis and birth, Meghan, Wes, and Meghan's mom and dad spent a lot of time at home as a family and cherished those final moments with Charlotte.  But we also did some "normal" things.  One day, Meghan and her mom accompanied me and my daughters to a small, low-populated beach.  Understandably, it was difficult to be in public because I'm sure Meghan would have received lots of "congratulations" comments and questions about when she is due, what her baby's due date is, what her baby's sex is, etc. Those would have been difficult questions and I know that she wasn't in a place to share all of the information yet.  In fact, they chose not to share any of this information with the public or on their social media until after Charlotte was born.  So we chose a more private, quiet outing.  Because Meghan knew my family so intimately, she told me that night after we went to the beach that it hit her while watching my girls play in the sand that her daughter would probably never know them, play with them, or grow up with them.  That was a really hard day.  We also had conversations about how to tell my daughter, Clara, who was only 2 and a half at the time, and who was over the moon about the baby in Meghan's belly.  

I did my very best to be her friend and her doula.  I scheduled her a massage.  I arranged an appointment with a 3-D ultrasound tech to get a recording of Charlotte's heartbeat in a bear so that they could hear her heartbeat forever. We talked so much about her birth plan and her desires for her care and Charlotte's care.  When Meghan told me she might like to have some maternity photos after all (they had previously decided not to do it), I called right away and found someone to come to their home that afternoon.  Melissa Goodyear of Bluebug Photography did a fantastic job with their photos.  She is also a volunteer photographer with the organization called Now I Lay Me Down to Sleep, so she had plenty of experience working with families dealing with loss and was incredibly compassionate.  As you can imagine, the session was extremely emotional.  

How they did that photo session, I'll never know.  How they smiled at all in those two weeks, I'll never know.  How we were still able to joke and be ourselves in spite of it all, I'll never know.  What I do know is that they wanted to cherish that time.  They wanted Charlotte to know that she was loved.  Meghan tried so hard to be happy and thankful for whatever time she had left.  She knew that her baby would feel all of her stress and anxiety, so she smiled and talked to Charlotte constantly.  In the last photo, they decided to take some photos in the nursery.  The photo of Wes wiping her tear gets me every time.

On the morning of Charlotte's due date, I woke up to my phone buzzing early in the morning.  Meghan was in labor.

**Click here to continue to Part IV**

The Birth That Changed My Life: Part II

This week in our Delmarva Community Birth Stories series, we're doing something a little different.  This story is shared by Thrive owner and doula, Maria Mengel.

If you haven't read Part I yet, hop on over and check it out now.

I received the worst message that you could ever receive as a friend/doula:

"Amniotic fluid is basically zero.  They can't find any kidneys or bladder.  Without kidneys, the baby will die after birth.  We're going to AAMC for induction.  You should come now."

Then it was followed by:

"worst nightmare"

I was completely in shock and "respond" mode.  I was in the shower, so I jumped out, toweled off, texted my husband to come upstairs now, and started getting ready.  I was in the car within minutes.  I was nervous, scared, worried about my friends and their baby, and in a real hurry to get there.  On my way, I called and talked to my mom and my doula/mentor to keep my mind from racing too much.  They both promised to pray and reassured me that I would be able to support my friends no matter what.  I told them that it wasn't fair that my first bereavement birth after receiving my certification was for my best friends.  I was still feeling pretty raw from the sudden death of my little brother just months before, and I truly didn't know if I could do it.

I didn't waste any time, but I didn't speed either.  While I was alone in the car, I tried to think about everything that I learned about babies who passed after birth.  I would need to be strong enough to explain to my friends what to expect and yet compassionate enough to support them through a potentially long induction and birth.  Two hours later, I pulled into the hospital parking garage.  I practically ran to the elevators, through the Labor and Delivery doors and down to the room where the nurse told they would be.  I quietly opened the door to my friends sitting on a couch together talking with their midwife.

I was breathing heavily from running and when I walked in it was completely silent.  

Without speaking, I walked across the room and sat down with my friends when Wes said "Well, the induction is not until Monday".  Apparently Labor and Delivery was really busy that day (Friday), so they decided to wait until Monday for the induction.  Their baby had been surviving with extremely low amniotic fluid levels and seemed to be doing fine for some time (they estimated up to 6 weeks or so), so they figured a few more days probably wouldn't make a difference.  Everyone seemed so relieved.

It was kind of awkward because we were all in shock, sad, relieved, and scared at the same time.  The midwife came back with a specialist on the phone from Children's National Health System in DC.  He expressed his apologies about their situation but offered them a pretty innovative opportunity.  He told them that he could see them early Monday morning for a fetal MRI to get a closer look at baby's renal system and lungs.  He told them that he would hopefully be able to get a more concrete diagnosis before the induction that morning so that they would know how to prepare for their baby's treatment after birth.   They decided to accept the offer and scheduled an MRI in Washington D.C. at 7:30am and an induction in Annapolis at 9am. 

We spent the next hour or so on the phone making appointments and then made the two hour trip back home to the Eastern shore.  Meghan's parents were on their way from upstate New York and they needed to stop at the grocery store to stock their fridge for guests.  Wes took my husband to the store with him while Meghan and I stayed at my house with the girls.  Meghan and I talked about how it all seemed so strange and so awkward that we just found out that her baby might die and we were doing normal things like grocery shopping and watching my kids play.   When they went home that night, I promised to stay in touch.

Guys, thank God for texting.  

We spent the time between her diagnosis and her birth texting constantly.  It was so much easier for Meghan to express her thoughts and feelings through texts than saying it all out loud.  Our relationship as friends grew leaps and bounds through those messages, many of which I saved so that I wouldn't forget.  The good and bad feelings, the fears, the worries, the logistics,etc.  It was like having a diary to process our thoughts together.  And it was so much easier to text our thoughts than say them out loud.

On Sunday, we scheduled our prenatal meeting together.  It was supposed to be a meeting where we discussed their dreams and desires for their beautiful water birth.  But instead, I got my first taste of what it was like to be a bereavement doula.  I met with Meghan and Wes and we discussed their options.  If the MRI the next day confirmed their worst fears, and baby truly did not have a bladder or kidneys, and severely underdeveloped lungs, they would have a few choices.  The staff at their hospital informed them that they could continue with the induction the next day, with the understanding that the baby might not make it through the stress of labor and die before birth.  Or they could wait for spontaneous labor, knowing that the baby may pass before labor begins, and then definitely deliver a stillborn baby.  Or, they could schedule a cesarean to guarantee that Meghan and Wes would have a chance to meet and hold their baby still alive, and then know that baby would probably pass in her arms shortly after.  

We talked about what to expect with all of the options, including the details that I didn't ever want to have to share with my friends.

They were aware that funeral arrangements would have to be made, but weren't ready to talk about it yet, so Meghan's mother and I talked through their options and I contacted a funeral home, asked questions about their options in terms of transportation of the baby's physical form and services.  I gathered all of that information and placed it in a folder in my birth bag.  They decided to wait until after the MRI in the morning to make a final decision about their birth plans.

The next morning, I knew that it would likely take a long time before the MRI was finished and they were able to talk with all of the necessary specialists in DC, so I did the only thing I could think of to pass time.  I feverishly cleaned my house.  I literally was scrubbing the freaking baseboards because if I sat still too long, I started getting sick thinking about what might happen later that day.  I had a knot in the pit of my stomach and every once in a while, I had to sit down and mentally tell myself that what they were about to go through was much harder than my role in the process, and that I could support them 100%.  I knew that there would be a lot of processing and healing time afterward for everyone and I planned to give myself the energy and space for that after the birth.  

When Meghan finally called, she told me that the news wasn't good.  They were unable to find any bladder or kidneys still.  They told her that her baby's lungs were severely underdeveloped (as a result of the low amniotic fluid) and that her worst nightmares were confirmed.  Life outside of the womb for their baby was highly unlikely.  They weren't going through with the induction. They were coming home and waiting for their baby to decide when it was time to be born.  They were aware that there was a risk of stillbirth, but they wanted to respect their baby's timing. 

Baby Rice's diagnosis:
Bilateral Renal Agenesis
Pulmonary Hypoplasia
Anhydramnios
• Potential slight spinal malformation

I was absolutely heartbroken for my friends.  And I was so relieved to know that today wasn't the day.  

We didn't know it at the time, but we still had another two whole weeks before their baby was born.  They decided after the MRI to find out the sex of their baby so that at least for a short while alive, their baby could have a name.  Here is the MRI photo of Charlotte Catherine Rice.

**Click here to continue to Part III**

***Of course, I have received full permission from Meghan and Wes to share my version of this story and use their real names***